Skip to main navigation menu Skip to main content Skip to site footer

Articles

No. 2 (36) (2021)

Re-use of research data

Submitted
1 May 2021
Published
21-07-2021

Abstract

Access to research data in the European Union is granted upon decisions made by entities that finance and conduct research. This matter has been changed by the Directive
(EU) 2019/1024 of the European Parliament and of the Council of 20 June 2019 on open data and the re-use of public sector information. After implementation of the Directive, opening of research data will become a legal obligation and everyone everywhere will be able to use them. However, the Directive gives member states significant freedom. Considering the above, academic communities should become partners in the dialogue with political decision-makers. The paper describes the provisions of the Directive and the seven recommendations regarding national regulations related to re-use of research data, with particular consideration of their use in medicine.

References

  1. Benkler Yochai, The Wealth of Networks: How Social Production Transforms Markets and Freedom. New Haven and London: Yale University Press, 2006.
    View in Google Scholar
  2. Burgelman Jean-Claude, Corina Pascu, Katarzyna Szkuta, Rene Von Schomberg, Athanasios Karalopoulos, Konstantinos Repanas, Michel Schouppe, „Open Science, Open Data, and Open Scholarship: European Policies to Make Science Fit for the Twenty-First Century” Frontiers in Big Data, 2 (2019): 2019.00043. doi.org/10.3389/fdata.2019.00043.
    View in Google Scholar
  3. Castells Manuel, Communication Power. Oxford: Oxford University Press, 2009.
    View in Google Scholar
  4. Clarke Amanda, Mary Francoli, „What’s in a name? A comparison of »open government« definitions across seven Open Government Partnership members” JeDem, No. 6 (2014): v6i3.227 doi: 10.29379/jedem.v6i3.227.
    View in Google Scholar
  5. D’Onofrio Marianne J., „A framework for a trans-disciplinary, translational research group for building innovation” Procedia Engineering, 118 (2015): 1274-1281.
    View in Google Scholar
  6. Drolet Brian C., Nancy M. Lorenzi, „Translational research: understanding the continuum from bench to bedside” Translational Research, 157 (2011): 1-5. doi: 10.1016/j.trsl.2010.10.002.
    View in Google Scholar
  7. Fazey Ioan, Lukas Bunse, Joshua Msika, Maria Pinke, Katherine Preedy, Anna C. Evely, Emily Lambert, Emily Hastings, Sue Morris, Mark S.
    View in Google Scholar
  8. Reed, „Evaluating knowledge exchange in interdisciplinary and multidisciplinary stakeholder Research” Global Environmental Change, 25 (2014): 204-220.
    View in Google Scholar
  9. Fecher Benedikt, Friesike Sascha, „Open Science: One Term, Five Schools of Thought”, [in:], Opening Science, ed. Sönke Bartling, Sascha Friesike. 17-48. Cham, Heidelberg, New York, Dordrecht, London: Springer Open, 2014. https://link.springer.com/content/pdf/bfm%3A978-3-319-00026-8%2F1.pdf.
    View in Google Scholar
  10. Fischer Bogdan, „Autorskoprawne konteksty ponownego wykorzystywania danych badawczych”, [in:] Sto lat polskiego prawa handlowego. Księga jubileuszowa dedykowana Profesorowi Andrzejowi Kidybie, t. II, ed. Małgorzata Dumkiewicz, Katarzyna Kopaczyńska-Pieczniak, Jerzy Szczotka. 553-576. Warszawa: Wolters Kluwer, 2020.
    View in Google Scholar
  11. Keramaris Nikolaos C., Nikolaos Kanakaris, Chris Tzioupis, G. Kontakis, P.V. Giannoudis, „Translational research: from benchside to bedside” Injury, 39 (2008): 643-50. doi: 10.1016/j.injury.2008.01.051.
    View in Google Scholar
  12. Klein Julie T., „Interdisciplinarity and Transdisciplinarity: Keyword Meanings for Collaboration Science and Translational Medicine” Journal of Translational Medicine Epidemiology, No. 2 (2014): 2-7. https://www.jscimedcentral.com/TranslationalMedicine/translationalmedicine-spid--collaboration-science-translational-medicine-1024.pdf.
    View in Google Scholar
  13. Lips Miriam, Miriam Lips, „E-Government is dead: Long live Public Administration 2.0”, [in:] ITC, Public Administration and Democracy in the Coming Decade, ed. Albert Meijer, Frank Bannister, Marcel Thaens. 30-41. Amsterdam-Berlin-Tokyo-Washington, DC: IOS Press, 2012.
    View in Google Scholar
  14. Lotrechiano Gaetano R., „Defining Collaboration Science in an Age of Translational Medicine” Journal of Translational Medicine Epidemiology, No. 2 (2014): 2-8. https://www.jscimedcentral.com/Translational-Medicine/translationalmedicine-spid-collaboration-science-translational-medicine-1023.pdf.
    View in Google Scholar
  15. Mons Barend, Cameron, Neylon, Veltrop Jan , et. al. Cloudy, increasingly FAIR; revisiting the FAIR Data guiding principlesfor the European Open Science Cloud. Information Services & Use. (37): ISU-170824. doi:10.3233/ISU-170824.
    View in Google Scholar
  16. Musser John, Tim O’Reilly, Web 2.0 Report: Principles and Best Practices. Sebastopol: O’Reilly Media Incorporated, 2007.
    View in Google Scholar
  17. Noveck Beth S., Wiki Government: How Technology Can Make Government Better, Democracy Stronger, and Citizens More Powerful. Washincton, DC: Brookings Institution Press; 2009.
    View in Google Scholar
  18. O’Reilly Tim, „Government as o platform”, [in:] Open Government: Collaboration, Transparency, and Participation in Practice, ed. Daniel Lathrop, Laurel Ruma. 11-42. Sebastopol: O’Reilly Media Incorporated, 2010.
    View in Google Scholar
  19. O’Reilly Tim, What is Web 2.0. Sebastopol: O’Reilly Media Incorporated, 2007.
    View in Google Scholar
  20. Riley Jenn, Understanding metadata what is metadata, and what is it for?. Baltimore, MD: National Information Standards Organization (NISO). https://groups.niso.org/apps/group_public/download.php/17446/Understanding%20Metadata.pdf.
    View in Google Scholar
  21. Rushkoff Douglas, Open Source Democracy: How Online Communication is Changing Offline Politics. London: Demos, 2003. https://www.immagic.com/eLibrary/ARCHIVES/GENERAL/DEMOS_UK/D030000R.pdf.
    View in Google Scholar
  22. Stallman richard M., Free Software Free Society: selected essays of Richard M. Stallman. Boston, MA, GNU Press 2002. https://www.gnu.org/philosophy/fsfs/rms-essays.pdf.
    View in Google Scholar
  23. Wayner Peter, Free for All. How Linux and the Free Software Movement Undrcut the Hihg-TechTitans. http://www.sisudoc.org/samples_by_language/en/pdf/free_for_all.peter_wayner.landscape.a4.pdf.
    View in Google Scholar
  24. Wilkinson Mark D., et al. The FAIR Guiding Principles for scientific data management and stewardship. Sci. Data 3:160018 doi:10.1038/sdata.2016.18.
    View in Google Scholar

Downloads

Download data is not yet available.